Frequently Asked Questions

You have now been a valuable member of 2000 stories for many years. We have enjoyed working with you on this project. We have also been particularly careful to ensure your rights are protected and that your information is securely held.

What is a research study?

A research study is a way for finding answers to difficult scientific or health questions. For example, we want to understand more about the healthy development of young people in Victoria. To do this, we are interviewing you about your lives every three to four years to learn what has changed and what has remained the same over time.

People who take part in research studies are called research participants. As a research participant, you should:

• Be told what the study is trying to find out and what you will be asked to do before you decide whether or not to take part in the study.
• Be told about any possible risks and any possible benefits of being in the study.
• Have enough time to decide whether or not to be in the research study and to make that decision without any pressure from the people who are conducting the research.
• Be told who will have access to information collected about you, and how your confidentiality or privacy will be protected.
• Be told who to contact if you have questions about the research or your rights as a research participant.
• Be able to refuse to be in the study or stop participating at any time after you begin the study.