Unfortunately, this event has now been postponed.
New date and details will be announced shortly.
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Sunbury four-year-old Harry Payne has been a regular visitor at the Murdoch Childrens Research Institute and The Royal Children’s Hospital since he was born with an extremely rare brain disorder.
Known as Microcephaly with Simplified Gyri Patterns, the condition affects Harry’s growth and development.
While Harry has impressed doctors with his progress, much is still unknown about conditions affecting early brain development.
Mum Fiona Handbury is holding a fundraising event in May to raise money for a new clinical research program at Murdoch Childrens to investigate disorders of early brain development like Harry’s.
The program will examine the causes and treatment of these conditions and establish a clinical program for affected children including diagnosis, genetic testing and supportive care.
It will also provide accurate information and education on these conditions for both parents and health care providers.
“Funding is urgently needed to help improve our understanding of early brain development,” Fiona said.
“We are thankful that Harry has developed into such a happy and healthy boy, but our journey would have been less traumatic had there been more information available and more research into conditions such as Harry’s.”
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