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Early Awareness and Recognition of congenital CytoMegaloVirus

What is the Early Awareness and Recognition of congenital CytoMegaloVirus (EAR-cCMV) study?

Children born with congenital cytomegalovirus (CMV) can be faced with issues such as hearing loss and cerebral palsy. Screening for this virus in the first 21 days of life has been recommended by experts across the world. This would help diagnose these children early, and possibly provide treatment for those who are appropriate to receive treatment. Our research study explores parents’ experiences of their child’s diagnosis of congenital CMV. We also want to explore other parent’s perspective of screening for congenital CMV, such as those who have children with permanent hearing loss not caused by congenital CMV. These study results will help us understand the best way to screen for congenital CMV.

Who can take part?

Parents or caregivers of children who have been diagnosed with congenital CMV. Their child must:

  • Currently be aged between 0 and 17 years;
  • Have received the diagnosis of congenital CMV in Australia.

Parents or caregivers of children who have permanent hearing loss not caused by congenital CMV. Their child must:

  • Currently be aged between 0-17 years;
  • Have a permanent hearing loss and have not been given a diagnosis of congenital CMV. 

What will I be asked to do?

We would like you to complete a short online 5 minute survey now to express your interest and determine if you can participate in the study. If you can participate, we may ask you to talk to us in a one hour interview, which can be done over the phone or video call. This will be done in the next month at a time that suits you.

How can I find out more?

If you have any questions or require further information, please contact Ms Emma Webb on 0421 222 485 or ears.ccmv@mcri.edu.au.

Please express your interest by clicking on this link: