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The Murdoch Children's Research Institute blog Featuring stories, opinons and news from our research team, patients and staff.

Parenting can be a stressful and challenging task at the best of times. From conception through to birth, getting to know your baby and navigating what’s best for your child as they grow into a young adult is a big responsibility that requires a lot of patience and perseverance. For Mary Storch, mother of a daughter with a rare genetic condition, parenting presents these same challenges - plus many more that most of us will never experience.