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Allied health and nursing practice guidelines for Duchenne muscular dystrophy

Research News
Monday, July 6, 2015 - 3:30pm

Drs Zoe Davidson and Paula Bray from the Centre of Research Excellence in Neuromuscular Disorders and the Australasian Neuromuscular Network (ANN) are leading a team of allied health and nursing experts from Australia and New Zealand to develop a clinical practice guideline for Duchenne muscular dystrophy (DMD).

The proposed guideline will provide evidence-based guidance specific to allied health and nursing practice for the assessment and management of those with DMD.

The key principal of care for people with DMD is preventative management, much of which is delivered by allied health professionals and nurses. The guideline will provide evidence based recommendations and expert advice on assessment and management of physical, cognitive and psychosocial well-being.

The methodology for the guideline development will be conducted in accordance with the “Procedures and requirements for meeting the 2011 National Health and Medical Research Council’s standard for clinical practice guidelines”. This process is overseen by an advisory group of neuromuscular practitioners, guideline methods experts, those with DMD and their family members.

Stay tuned for further updates and opportunities to contribute as the guideline is developed. A public consultation period on the guidelines will open in 2016.

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* Duchenne muscular dystrophy is a genetic neuromuscular disorder. It primarily affects boys and is characterized by progressive and relentless muscle wasting and weakness, leading to the loss of the ability to walk around the early adolescent years.