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Facing Forward- the faces of rare and genetic diseases

Institute News
Published: 
Friday, February 27, 2015 - 2:15pm
"I'm Louis. I have Usher Syndrome. I have cochlear implants so I can hear you but one day I won't be able to see you."

The Institute, along with the Genetic Support Network of Victoria ran the ‘Facing Forward’ campaign to show the many faces of people living with rare and genetic conditions. Meet some of the people in this moving collage, presented on Rare Disease Day, 2015.