News & Events

Research News
Scans while mum Jodie was pregnant showed doctors that her little boy had a rare and very severe heart defect called hypo-plastic left heart syndrome. This means that as he developed in utero, the left side of his heart did not form correctly.
Research News
Wesley was just four days old when he underwent his first heart surgery. In his short life he has undergone three heart surgeries - culminating in the Fontan procedure which he had in 2011. Now at six years of age, his mother Amy says Wesley is full of energy - and even has to tell him to slow down sometimes, something she never thought possible.
Research News
It's one of the most common inherited conditions that until recently was shrouded in secrecy and sometimes shame, but researchers hope a new community resource will help improve understanding of Disorders of Sexual Development (DSD).