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Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays.

Pubmed ID: 
28399928
Year: 
2017
Month: 
Apr
Volume: 
12
Issue: 
1
Citation: 
Zurynski Y, Deverell M, Dalkeith T, Johnson S, Christodoulou J, Leonard H, Elliott EJ, APSU Rare Diseases Impacts on Families Study group. Australian children living with rare diseases: experiences of diagnosis and perceived consequences of diagnostic delays. ORPHANET JOURNAL OF RARE DISEASES 12 (1) : 68(2017) PubMed