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Participating in the PALM study

What does the PALM study involve for participants?

Participating in the PALM study depends on the age of the child at the time.

If the child is less than two and a half years old:

Mothers will be asked to complete three online or paper questionnaires.

  • Questionnaire 1 
    This asks about the parents’ health and social background. It also asks about the child’s health, the parents general stress levels and their knowledge of health information.
    Completion time ~ 15 mins

  • Questionnaire 2
    This asks parents on their thoughts of their child’s health and development. It also asks about their general feelings about parenting and genetic testing during pregnancy. 
    Completion time ~ 30 mins
  • Questionnaire 3
    This asks parents about their child’s health and development, covering both health and social-emotional areas.
    Completion time ~ 30 mins

If the child is more than two and a half years old:

Parents are asked to complete three questionnaires. Parents and children are also invited to attend The Royal Children’s Hospital for two child assessments. 

  • Questionnaire 1 
    This asks about the parents’ health and social background. It also asks about the child’s health, the parents general stress levels and their knowledge of health information. We would also like to access hospital medical records to check medical details on the pregnancy, such as ultrasound results.
    Completion time ~ 15 mins
  • Questionnaire 2
    This asks parents on their thoughts of their child’s health and development. It also asks about their general feelings about parenting and genetic testing during pregnancy. 
    Completion time ~ 30 mins
  • Questionnaire 3
    This asks parents about their child’s health and development, covering both health and social-emotional areas.
    Completion time ~ 30 mins
  • Assessment 1
    A psychologist will assess the intellectual health of the child. The assessment is called the Wechsler Preschool and Primary Scale of Intelligence and involves asking the child to perform short tasks. These tasks are fun and tailored to the age of the child. The psychologist will observe the child’s thinking, reaction, learning and communication. 
    Completion time ~ 1-2 hours
  • Assessment 2
    A paediatrician will perform a general health checkup of the child. There are no blood tests or painful procedures in this checkup. 
    Completion time ~ 45 mins

Optional parts of PALM

The following are optional parts of the study. Participants have the option to participate or not and it will not affect participation in other parts of the study.

  • Updated microarray analysis
    If a chromosome change was detected on a microarray during your pregnancy, you have the option to have this reanalysed using the latest software. The laboratory may update the result or it may remain the same. If there is a change, it may or may not be important to the future health of the child. 
  • Health information from the Victorian Perinatal Data Collection
    Some women may find it hard to remember the answers to questions about their pregnancy and birth. We ask for permission to access government health records about the pregnancy and birth of that child. This information is routinely collected by the Victorian Perinatal Data Collection from every hospital. We would like to collect information about the child’s birth weight, whether the child was born early and if there were any health issues at birth. We can only access this data with your consent.