Next-GEN Cystic Fibrosis (CF) study
- Project status: Active
Research area: Infection and Immunity > Respiratory
Exploring the mental health of teenagers with cystic fibrosis (CF) to establish a more targeted treatment approach to this crisis.
Our first step in our research is to explore the factors that impact mental health in teenagers without cystic fibrosis. This aims to help children and people with cystic fibrosis live happier, healthier lives.
Our study survey will give researchers a more in-depth understanding of adolescent mental health.
Our first step in our research is to explore the factors that impact mental health in teenagers without cystic fibrosis. This aims to help children and people with cystic fibrosis live happier, healthier lives.
Our study survey will give...
Our first step in our research is to explore the factors that impact mental health in teenagers without cystic fibrosis. This aims to help children and people with cystic fibrosis live happier, healthier lives.
Our study survey will give researchers a more in-depth understanding of adolescent mental health.
Overview
Cystic fibrosis (CF) is the most common life-shortening genetic condition in children, affecting multiple organs throughout the body while drastically impacting the quality of life and physical wellbeing.
Mental health problems have been detected in those living with CF at rates 2 to 3 times higher than the general population.
Information for participants
We are looking for young people and teenagers aged 10 to 18 without CF and a caregiver to complete a short online questionnaire. The survey included questions about:
- Mental wellbeing
- Sleep
- Pain
- Risk-taking behaviours
Contact us
Dr Hiep Pham
Respiratory Physician, The Royal Children's Hospital
Email: [email protected]
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