Kidney Patient Advocacy Group (PAG)
Our PAG gives equal voice to patients, carers and family members of patients within the Kidney Flagship.
The PAG will provide valuable insight and advice on the work of the Kidney Flagship to all various teams, including the leadership, research coordinators, project managers and clinical staff.
This collaborative partnership ensures that the PAG actively participates in all activities undertaken by The Kidney Flagship, contributing to a patient-centred approach and informed decision-making.
The PAG will provide valuable insight and advice on the work of the Kidney Flagship to all various teams, including the leadership, research coordinators, project managers and clinical staff.
This collaborative partnership ensures that the PAG...
The PAG will provide valuable insight and advice on the work of the Kidney Flagship to all various teams, including the leadership, research coordinators, project managers and clinical staff.
This collaborative partnership ensures that the PAG actively participates in all activities undertaken by The Kidney Flagship, contributing to a patient-centred approach and informed decision-making.
Key responsibilities of our PAG
- Review and advise on new research to ensure alignment with community needs.
- Identify priority areas and barriers, offering a consumer perspective in strategic decision-making
- Raise awareness of the importance of kidney research and the valuable role consumers play as active partners in the research process.
Contributing shared experiences and perspectives so we can improve the design and development of our approaches. Our PAG will help bridge the gap between the research and medical community, and the patient community so we can bring about positive change.
Our patient stories
Please read and listen to patient and family experiences from our kidney community below.
- Stem cell-derived kidneys could help better understand rare kidney disorder
- Child’s cells helping researchers develop customised treatments for inherited kidney disease
- Meet Archer's journey to his diagnosis of Alport syndrome, a genetic kidney disease, The Royal Children's Hospital
- Watch Bree Faulkner's story about her journey with kidney disease, Melbourne Genomics
- Video about Impact of Giving: Centre for Health Analytics, The Royal Children's Hospital
- Read Quinnie's story about her kidney transplant at the Royal Children's Hospital
Our events
You can view videos and information about our Kidney Flagship events below