Australian Hand Difference Register (AHDR)

Research area: Genetics > Reproductive Epidemiology | Status: Active

Child with different hand

The Australian Hand Difference Register (AHDR) is a database of children born with a hand difference and/or arm difference.

Congenital hand differences are not that common and occur in up to 30 children in every 10,000 births.

Congenital hand differences are not that common and occur in up to 30 children in every 10,000 births.

Overview

ahdr logo final webA congenital hand difference is a hand or arm difference that is present at birth. Some of the more common differences include:

  • having more or fewer than five fingers
  • fingers that will not bend or will not straighten
  • fingers that are joined together
  • bones in the hand or arm that are too short or missing

Congenital hand differences are not that common and occur in up to 30 children in every 10,000 births, depending on the population studied [1,2,3].

The Australian Hand Difference Register (AHDR) is a database of children born with a hand difference and/or arm difference. The AHDR is managed by researchers at the Murdoch Children’s Research Institute, located at The Royal Children’s Hospital in Melbourne. 

The AHDR aims to:

  • find out how many children are born with a hand/arm difference in Australia
  • learn more about causes and risk factors
  • gain information to help plan services
  • identify possible participants for future research
  • identify the effects of hand differences on children
  • decide how to best manage hand differences

More resources

Frequently asked questions

child in hospital

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