Lineage Study
- Project status: Active
Research area: Genomic Medicine > Biomedical Ethics
Developing ethical governance for genomic data
The Lineage Study is an ambitious five-year project (2022–2027) dedicated to developing a framework for the ethical governance of genomic datasets in Australia.
The project brings together bioethics scholars, legal academics, social scientists, clinical geneticists, genomic researchers, patients, First Nations scholars, and other key stakeholders.
The Lineage Study is an ambitious five-year project (2022–2027) dedicated to developing a framework for the ethical governance of genomic datasets in Australia.
The project brings together bioethics scholars, legal academics, social scientists,...
The Lineage Study is an ambitious five-year project (2022–2027) dedicated to developing a framework for the ethical governance of genomic datasets in Australia.
The project brings together bioethics scholars, legal academics, social scientists, clinical geneticists, genomic researchers, patients, First Nations scholars, and other key stakeholders.
Investigating ethical, legal, and social implications
This study investigates the ethical, legal, and social implications associated with sharing genomic data. The study focuses on understanding pathways to patient and public trust, identifying necessary legal or regulatory reforms, and creating a robust governance framework to guide the responsible use and management of genomic and associated medical data.
Leading bioethics research
The MCRI Biomedical Ethics research group is co-leading the bioethics aspect of the Lineage Study, focusing on genomic privacy and trust. This research aims to ensure that genomic data is managed responsibly and ethically, fostering trust among patients and the public.
Research team
- Dr Chris Gyngell
- Dr Danya Vears
- Professor Julian Savulescu
- Dr Clara Gaff
- Professor Zornitza Stark
- Professor John Christodoulou
Contact us
For more information on the Lineage Study please contact Dr Chris Gyngell below.
Email:
show email address
Phone:
show phone number
Get the latest information
Vale Patricia Ilhan
Genomic tool highly effective at detecting rare disease diagnoses
Social media use linked to poorer mental health in early adolescence
Safety concerns biggest barrier to vaccination
Accelerating recovery for children with concussion
Early lung damage mapped in children with cystic fibrosis
New network to make access to cutting-edge trials easier
MCRI’s 40th Anniversary Gala celebrates four decades of discovery
Protecting children receiving cancer treatment from infections
Multi-pronged plan to address childhood obesity crisis
Share //
