Psychosocial determinants of health in infants & preschool children with cystic fibrosis (CF) diagnosed via newborn screening

Project status: Active

Research area: Clinical Sciences > Brain and Mind > Infant Mental Health

The emotional and mental health impact of CF

Cystic fibrosis (CF) is a serious, inherited condition that requires daily treatment, causes ongoing health challenges, and can increase the risk of early death for patients and their families.

About this study

The emotional and mental health impact of CF is considerable throughout a person's life. Our study looked at how the socio-emotional wellbeing of preschool children with CF relates to their clinical outcomes in early life.

Study focus

Document the mental health of children less than 6 years of age with CF, including markers of increased stress and/or trauma related to CF medical care.
Investigate whether a relationship exists between mental health, medical-related stress, and CF health parameters (pulmonary inflammation, infection, structural lung disease, weight, height, and Body Mass Index (BMI)) in early childhood.

Additional focus

The study also examines the validity of a five-question screening tool designed by the project lead to screen for CF medical care related to stress/trauma responses. This study is a collaboration with ARREST CF and Princess Margaret Hospital Perth.

Goals and impact

This research aims to provide valuable insights into the psychosocial determinants of health in young children with CF, helping to improve their overall wellbeing and clinical outcomes.