Slipped Capital Femoral Epiphysis (SCFE), known in Australia as Slipped Upper Femoral Epiphysis (SUFE) is one of the most common hip conditions in adolescents. SUFE occurs when the ball of the femur, or thigh bone, slips off the neck of the femur. In almost all cases, treatment involves surgery as early as possible.

However, the surgical approach and outcome can vary across surgeons and hospitals. To improve the understanding of SUFE treatment and management, we are creating a registry to collect clinical data from children diagnosed with SUFE.

A clinical registry is a secure database that stores medical and patient outcome information. By collecting this data, we aim to:

• Improve current clinical care for SUFE
• Support future patients with similar conditions
• Understand long-term outcomes beyond clinical visits at RCH

The Royal Children’s Hospital (RCH) is one of many participating sites in this international registry, which is coordinated by the British Columbia Children’s Hospital in Canada.

Children under 18 years old who are receiving treatment for SUFE at The Royal Children’s Hospital (RCH) may be eligible to participate.

As a participant, you will be asked to complete surveys at several time points:

• At baseline (before surgery)
• After surgery
• At 1-, 2-, 5-, and 10-years post-surgery

These surveys focus on hip function and daily life activities. In addition, clinical data will be collected from your medical records by a member of the research team. All data entered into the registry is de-identified to protect your privacy.

This project partners with leading institutions worldwide, including:

• The Royal Children’s Hospital (RCH), Melbourne
• British Columbia Children’s Hospital, Canada
• The University of British Columbia, Canada
• Monash Health, Victoria
• Queensland Children’s Hospital, Brisbane
• Perth Children’s Hospital, Perth
• The Children’s Hospital at Westmead, Sydney
• Adelaide Women’s and Children’s Hospital, Adelaide
• Flinders Medical Centre, South Australia
• Alice Springs Hospital, Alice Springs
• Darwin Hospital, Darwin

For more information about the registry please email us.

Bec Moorhead, Clinical Research Coordinator
Email: show email address