Examining the meaning of trust in the use of genomic data: Australian public perspectives

  • Project status: Active

Research area: Genomic Medicine > Biomedical Ethics

How the Australian public conceptualise trust in relation to their genomic data

Personal genomic information is valuable data. ‘Trust’ is therefore crucial for the public to provide this information and consent to its use.

This qualitative study aims to explore how the Australian public conceptualise trust in relation to their genomic data.

This is a Masters project.

Personal genomic information is valuable data. ‘Trust’ is therefore crucial for the public to provide this information and consent to its use.

This qualitative study aims to explore how the Australian public conceptualise trust in relation to...

Personal genomic information is valuable data. ‘Trust’ is therefore crucial for the public to provide this information and consent to its use.

This qualitative study aims to explore how the Australian public conceptualise trust in relation to their genomic data.

This is a Masters project.

Information for participants

Up to forty adults will be recruited via social media to participate in one of eight 90-minute recorded online focus groups. We will be asking which organisations, entities, or people they trust, and what factors may increase or decrease their trust.

If you would like to consider participating in this study, please register your contact details below.

Register your interest


Our findings

Our findings will promote the development of effective and trust-informed regulations and frameworks for the handling of this data in Australia.

Collaborations

This study is a small part of the LINEAGE Study, a research consortium working on emerging ethical, legal and social issues in the governance of genomic information.

Research team

  • Principle Investigator: Dr Danya Vears (MCRI)
  • Study Investigator: Dr Christopher Gyngell (MCRI)
  • Study Investigator: Monica Ferrie (GSNV)
  • Study Student Investigator: Laura King-Grey (University of Melbourne, Masters of Genetic Counselling)

Contact us

Dr Danya Vears, Honorary Fellow Manager, Biomedical Ethics
Email: 

Laura King-Grey, Master Student
Email: [email protected]