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Our PAG gives equal voice to patients, carers and family members of patients within the Kidney Flagship. The PAG will provide valuable insight and advice on the work of the Kidney Flagship to all various teams, including the leadership, research coordinators, project managers and clinical staff.
Patient Story: Edward Boyer is one of only 500 in the world to have been diagnosed with a rare condition called KIF1A-Associated Neurological Disorder (KAND). This condition has left Edward unable to walk, legally blind and facing several cognitive and behavioural challenges.
Three Murdoch Children’s Research Institute researchers have received 2023 Allergy and Immunology Foundation of Australasia (AIFA) grants that will help accelerate paediatric allergy research in Australia. Associate Professor Rachel Peters, Dr Vicki McWilliam and Daniela Ciciulla, of the
A cure for a severe immune deficiency disorder in children that makes them extremely vulnerable to infections will be offered in Australia for the first time under a cutting-edge gene therapy trial. Murdoch Children's Research Institute (MCRI) will lead the clinical trial for children diagnosed
MCRI applauds Sue Hunt AM for her illustrious 13-year journey as CEO of The Royal Children's Hospital (RCH) Foundation. Sue has announced she is stepping down as of March 2024. Her outstanding leadership and unwavering commitment to children's health will leave an indelible mark on the Foundation.
New research, published in The Lancet and launched at the Scientific Meeting of the International Federation of Obstetricians and Gynecologists in Paris, found that the healthcare needs of pregnant adolescents will continue to be ignored in low and middle-income countries (LMIC) unless there are
Murdoch Children’s Research Institute researcher and Australian Genomics Managing Director Tiffany Boughtwood has been appointed to the World Health Organization’s (WHO) new Technical Advisory Group on Genomics (TAG-G). TAG-G was established in September 2023 after the WHO’s Science Council
A pioneering neonatal study has reported its two-year findings, confirming that a novel approach developed in Australia can improve the lung health of extremely premature infants born with breathing difficulties. The multi-centre OPTIMIST-A trial, in which Murdoch Children’s Research Institute
A new research centre based at Murdoch Children’s Research Institute will be established to improve emergency hospital care for children across Australia and New Zealand. The new Centre of Research Excellence (CRE) in Paediatric Emergency Medicine has received a total of $2.5 million in funding
Murdoch Children’s Research Institute has joined key national and Victorian health services in co-signing two initiatives in support of the Voice to Parliament. Led by the Victorian Aboriginal Community Controlled Health Organisation (VACCHO), The Health Statement on the Voice outlined how a
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