The newly established Australian Hand Difference Register (AHDR) is a database of children born with a hand difference and/or arm difference. The AHDR is managed by researchers at the Murdoch Children’s Research Institute, which is located at The Royal Children’s Hospital in Melbourne. To begin with, the AHDR will focus on children attending The Royal Children’s Hospital, before being extended within Victoria, and then Australia-wide.
The AHDR aims to:
- find out how many children are born with a hand/arm difference in Australia
- learn more about possible causes and risk factors
- gain information to help plan services
- identify possible participants for future research
The AHDR is currently funded by Aussie Hands (The Aussie Hands Foundation Inc.), a support group for people who have a hand difference and their families, and additional funding has been obtained from the Australasian Foundation for Plastic Surgery. Funding organisations do not have access to any individual or confidential information contained on the AHDR.