Research area: Clinical Sciences  | Status: Active

Mother and baby

Congenital Diaphragmatic Hernia (CDH) Research Priorities

This Australian-led Research Priority Setting Partnership seeks to identify the Top 10 CDH Research Priorities that will direct future research to improve the health and wellbeing for persons born with CDH and their families.

This Australian-led Research Priority Setting Partnership seeks to identify the Top 10 CDH Research Priorities that will direct future research to improve the health and wellbeing for persons born with CDH and their families.

Overview

CDH Research Priorities graphicThe Gaps in the CDH Journey project will identify questions and priorities of people with a lived experience of Congenital Diaphragmatic Hernia (CDH), their caregivers, and healthcare providers.

CDH is a life-threatening condition caused by a baby’s diaphragm not forming properly during pregnancy, meaning abdominal organs can move into the space where the lungs and heart are.

This life-threatening condition affects 1 in every 2,500 babies and is one of the more common congenital birth defects. Australia’s current survival rate for babies diagnosed before birth is 50%.

There is currently no known cause or cure for CDH.


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Your participation in this short survey can help shape the future direction of CDH research. 

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CDH Australia

Neonatal Research at Murdoch Children's