Research area: Population Health > Adolescent Health  | Status: Active

Overview

We are trying to find out how to best care for young people experiencing period or pelvic pain and endometriosis.

Most young people who have periods will experience some pain. For some people, this is manageable and will not change normal everyday activities. For others, the pain they experience will stop them from doing everyday activities and may impact their quality of life and mental health.

We believe that period and pelvic pain can be managed to prevent chronic pain and endometriosis. We want to measure and track periods, pain, quality of life and mental health in young people affected by period or pelvic pain and endometriosis.

Who can take part?

You may be eligible to take part in this study if you:

• Are aged between 10 -18 years
• Experience period pain, pelvic pain or endometriosis
• Have been referred to Gynaecologist (a doctor who specialises in women’s health)
• Live in Australia

We are currently recruiting young people and their parents/guardians to join LongSTEPPP.

Who cannot take part?

• If you have already seen a Gynaecologist

What will I do?

• Complete up to 8 questionnaires in the first year
• Complete between 6 to 7 questionnaires yearly for up to 5 years or until the end of 2027
• The parent/carer of the young person will be asked to complete 3 questionnaires yearly.

Optionally, young people and their female parent/guardian enrolling at some sites (Melbourne, Sydney, Brisbane) can take part in pain-orientated sensitivity testing.

Get involved

Register your interest in the LongSTEPPP project.

Register your interest

Research team

• Study Investigators: Professor Sonia Grover
• Project Coordinator: Dr Courtney Munro
• Study Nurses: Michelle Hartwell and Saranga Senanayake

Collaborators

• Deakin University
• Orygen

Funders

The work is supported by a grant from the Medical Research Future Fund (MRFF).

Positions available

We are currently recruiting for a PhD student with a background in psychology or a related discipline to undertake postgraduate research into mental health trajectories in young people with period, pelvic pain, and endometriosis. Interested applications, please contact us using the details below.

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