The Victorian Cerebral Palsy Register collects information on people with cerebral palsy, born or living in the Australian state of Victoria since 1970. The Register was founded by Professor Dinah Reddihough in 1987 and is now one of the largest geographically-defined cerebral palsy registers in the world, holding information on over 5200 individuals with cerebral palsy. Information collected on individuals includes demographic information, birth details, known or apparent causes, type and severity of the cerebral palsy and any associated impairments.
Involvement of families is greatly valued by Register staff and researchers. Unless families or individuals with cerebral palsy choose not to be contacted about research opportunities, they may receive invitations from time to time to participate in suitable projects. The Victorian Cerebral Palsy Register fulfils state privacy legislation and is governed by the Human Research Ethics Committee of the Royal Children’s Hospital, Melbourne.
What we do
By collecting information about Victorians with cerebral palsy, we can monitor trends in the incidence (number of new cases) of cerebral palsy over time in Victoria. This is important as it allows researchers to identify factors that appear to increase or reduce the risk of cerebral palsy. The Register staff also have a number of other research interests including:
- Identifying causes and risk factors for cerebral palsy
- Understanding brain imaging patterns in children with cerebral palsy
- Investigating the effectiveness of interventions for managing cerebral palsy
- Quality of life of individuals with cerebral palsy
- Medical service needs of individuals with cerebral palsy
- Understanding how individuals with cerebral palsy change as they get older
Registered families receive a six-monthly newsletter that keeps them up-to-date on what we are doing.
Our ultimate goal is to advance our knowledge of cerebral palsy and provide better help and support for everyone with cerebral palsy, their families and the communities in which they live.
Want more information?
Our offices are currently based at the Murdoch Childrens Research Institute which is co-located with the Royal Children’s Hospital, Melbourne. We are always happy to hear from individuals with cerebral palsy and their families, as well as other researchers and health professionals.
Tel: 03 9345 4808
Tel: 03 9345 4807