Victorian Cerebral Palsy Register (VCPR)

Research area: Clinical Sciences > Neurodisability and Rehabilitation | Status: Active

Happy child

The VCPR is a long-running population-based register and study of cerebral palsy in Victoria.

We collect health information on people with cerebral palsy who were born, had lived, or had received health services in Victoria from 1970 onwards.

We collect health information on people with cerebral palsy who were born, had lived, or had received health services in Victoria from 1970 onwards.

Overview

Founded in 1987, the VCPR project involves the collection of health information on people with cerebral palsy who were born, had lived, or had received health services in Victoria from 1970 onwards.

At the start of 2022, over 6,200 people had been registered, making the VCPR one of the largest cerebral palsy registers in the world.

CP Register logo VIC BIGOur purpose

The purpose of the VCPR project is to ensure a sustainable, high-quality, population-based register of Victorians with cerebral palsy and to use this information to contribute to the creation and sharing of knowledge about cerebral palsy in Victoria, nationally, and internationally.

Project details

The VCPR team primarily identifies new cases of cerebral palsy via children’s engagement with The Royal Children’s Hospital, Monash Children’s Hospital, or the Victorian Paediatric Rehabilitation Service. After confirming eligibility and obtaining consent from families, we collect demographic, causal, and clinical information on each child from the relevant electronic medical records.

This information forms the basis for our epidemiological and causal research program. In addition, we contribute data to the Australian Cerebral Palsy Register and collaborate on national and international epidemiological projects. The VCPR is also frequently used as a platform to facilitate other cerebral palsy research.

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